Take a look at this informational and fun infographic on hearing loss and its many causes, courtesy of www.hearingloss.com
At the age of 25, my lifelong battle against a rare, genetic and brutally painful eye disease finally took its toll and rendered me almost legally blind. My young son, who was just a year old at the time, was also experiencing episodic bouts of pain and severe sensitivity to light which meant he too had inherited the dreaded disease. Each erosion or, scratch across our corneas, occurred for any number of reasons; simply upon opening our eyes from sleep, or a wisp of hair across the eye, or for no known reason at all. Each erosion caused a lattice work pattern of abrasions to appear across the surface of the eye. Each and every time my infant son or I experienced an erosion, we were confined to bed. The extreme photophobias meant those days in bed were spent in utter darkness. Not a candle, not the flicker of a television, not a ray of sunlight could be tolerated. My son was so young that scarring of his cornea had not yet become a concern. The horror of the pain in someone so young? Yes. Blindness not yet. For me though, the recurrent corneal erosions and central corneal clouding had finally disabled me.
I had no insurance, could not allow myself to continue to drive, correcting my vision with glasses was not a reality and faking it at work was out of the question. Between his bouts and mine it was pretty hard to hold down a job for long. On good days when I could see it was a challenge. Without vision at least some of the time, we were done for. I was alone and I was scared. I knew I needed a cornea transplant. My Mother had one with moderate success and an Aunt and Grandfather had also been helped by the operation to some degree. Because I had been dealing with my disease, I mean just living with it and all its consequences as a part of my reality since birth, missing school, losing jobs, learning how to handle pain I did with no doctor I could call on. Continue reading